Guest Blog (Shelley Cadamy Munoz): As good as it gets

shelley cadamy munozShelley Cadamy Munoz, a Tulsa resident, is the adoptive mother of three children. This post first appeared on her blog on January 20, 2013 and is reposted with permission.

Usually when I write, I try to come up with some kind of lesson, something I’m supposed to learn, some bigger picture reason for why things happen the way they happen. Today, though, I’m just amazingly angry.

I just left Trinity, my 10-year-old, at inpatient psychiatric care for the second time since November. It’s her third stay – the first one was a little over a year ago. She arrived at psychiatric care via a Tulsa Police Department patrol car. The same incredibly kind police officer who showed up at our house last Tuesday (five days ago) called me after she heard our address on her radio today and said, “I’m on my way. I heard dispatch give your address, and I said “I know that kid. I’m coming over.” By the time she arrived, I was drenched in sweat, shaking, afraid I might be having a heart attack, and pushing with all the strength I had left in my legs to keep our attic door closed as Trinity threw her weight against it from the other side, as she screamed and yelled to be let out and kicked holes in it. She hurled her tiny little 10-year-old body like a weapon against the years of abuse and neglect that she suffered and can’t escape, though she’s been safe, loved and cared for for almost four years.

That’s where I find myself more and more lately. Sweating, exhausted, terrified and praying to God that my daughter doesn’t get out of wherever I’ve been lucky enough to trap her and accidentally break her neck or throw herself into the covered pool and drown. For years she would at least stay in her room while she was raging, which provided some level of safety. But over the last few months, she leaves her room, roams the house, the yard and our neighborhood if I don’t physically restrain her, which is getting harder and harder. Last Tuesday, with both my husband and I home, she managed to throw her closet door down the stairs, nearly falling down with it, then get out the back door, narrowly miss falling into the covered pool, out the gate, and run down the street wailing hysterically and tearing off her clothes. My husband and I stood in the driveway, knowing if we chased after her it would only get worse. So, we stood, feeling hopeless, doing nothing, hoping the police arrived soon.

So, here’s where I have to ask, how in the hell is this as good as it gets for mentally ill children in this country? I read with both horror and relief  “Thinking the Unthinkable” by the Anarchist Soccer Mom where she writes “I am sharing this story because I am Adam Lanza’s mother,” and I thought, “yeah, that’s me. Is my kid the next one on the national news?”And I know a lot of other parents who are thinking the same thing.

My husband and I both have advanced degrees, we make what is an upper income for the state in which we live, we’re resourceful, and I’m assertive to the point that I’m sure I’ve been called a b*tch more than once. I’ve got a great supportive network, including a wonderful extended family, and I’ve read every book I can find on Reactive Attachment Disorder (her diagnosis). She has therapy weekly, takes medication, sees a good psychiatrist, and is on the waiting list for the Reactive Attachment Disorder (RAD) unit in our community. Though the RAD unit has a good reputation, there are only four beds, and the stay there is a minimum of 6 months, so the beds don’t open up often.

There’s not much written about her diagnosis – in fact, if you read attachment texts, it’s generally not covered. My kids’ therapist has asked to write his doctoral thesis on our family, because both of my girls have RAD diagnoses, and in his words “are not burning down our house nor stabbing us to death in our sleep,” so we must be doing something right. So, basically, I’m the Mrs. Cleaver of the RAD set, and I still can’t help my kid. I’m doing every damn thing I can think of, and I still can not help my kid.

In ten days, the psychiatric hospital will likely send Trinity home, because she will no longer be “acute,” – no longer a danger to herself nor others. Trinity can do 10 days in a psych ward like it’s Six Flags. She won’t show any of her defiance. She’ll be a super sweet kiddo, because she’s smart and she knows how the system works, and she wants to be in control. In foster/adoptive circles, we call this the honeymoon. If she didn’t have a RAD diagnosis, she’d be stepped down into residential care once she was no longer acute. But, because she has a RAD diagnosis, the hospital will send her home, because they know they can’t help her in the 90 days or so they could keep her and actually get paid. They know she needs the RAD unit (6 months to 2 years). So, they’ll send her home, and she’ll continue to have rages that require police intervention once a week, with no end in sight, and it will traumatize my two other already traumatized children and stress my marriage and slowly but surely destroy our family. And, the best I can hope for is that she doesn’t hurt anyone else. And, this is as good as it gets.

The opinions stated above are not necessarily those of OK Policy, its staff, or its board. This blog is a venue to help promote the discussion of ideas from various points of view, and we invite your comments and contributions. To see our guidelines for blog submissions, click here.

 

 

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The opinions stated in guest articles are not necessarily those of OK Policy, its staff, or its board. To see our guidelines for blog submissions, click here.

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